Strengthening research and improving care
for people living with
vascular malformations.

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2026 Annual Report Spotlight

Discover how ARDVARC researchers, clinicians, patients, families, and advocacy partners are working together to advance understanding, improve care, and translate discoveries into better treatments for individuals living with vascular malformations.

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Read Our Research

"I Finally Had a Genetic Answer": Sinéad Zalitach on Receiving Genetic Testing Results

By Sinéad Zalitach

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Sinéad Zalitach and friends with the "genetic reveal" cake.

RDCRN Publishes First-Ever Annual Report

The Rare Diseases Clinical Research Network

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2026 RDCRN Annual Report

"An Opportunity to Be Part of a Rare Disease Community": Dr. Michael Jeng on the 2026 K-T Support Group Conference

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Dr. Jeng and panelists at the K-T Support Group 2026 Conference.