Goals, Mission & Vision

Our Vision

Build a distinct program that builds upon an established clinical trial consortium (CaNVAS).

Develop advanced infrastructure for clinical trials, strengthening existing academic and commercial partnerships, fostering new collaborations, and promoting expertise across a diverse workforce.

Our Goals

Overall Long term Goal: To support interdisciplinary, collaborative research that will improve the outcomes for underserved populations of patients with rare complex vascular malformations (CVM) by developing a consortium to support, educate, and foster researchers in all specialties to work in collaboration with patient advocacy group sponsors.

Overall Goal of the Rare Diseases Clinical Research Consortia: To work as an interdisciplinary research team (patient advocacy groups, clinical, translational, basic, and health services scientists) with the Rare Diseases Clinical Research Network to enhance clinical trial readiness through the specific research aims noted below.